Le Phare, established in 1999, provides assistance to parents who have a child suffering from a degenerative or terminal illness or a serious disability requiring complex care. This support includes: an in-home respite program; residential respite for 12 children at a time at Maison André-Gratton (up to 21 days per child per year); and end-of-life (palliative) care. It is the only pediatric hospice in Quebec and one of four in Canada.
The Foundation’s grant will support Le Phare’s efforts to assists organizations in four regions of Quebec develop local in-home respite programs model after its own innovation program.
Responding to requests from across Quebec and Canada, Montreal-based Le Phare will help local partners establish in-home respite programs in four regions of Quebec.
Le Phare’s in-home respite care program uses volunteers to develop long-term relationships with families with a seriously ill or disabled child, visiting their homes for three hours weekly and engaging the children in activities adapted to their state of health and interests. Well established in Montreal, the program serves some 35 families.
Le Phare will provide specialized volunteer training as well as video conferencing and web-based support. They expect to help train 54 volunteers over three years, most of whom will serve one family each.
Visit www.phare-lighthouse.com for more information